The International Association for Scientific Study of Intellectual Disabilities (IASSID) has organized a roundtable discussion for the members of the Special Interest Research Group (SIRG) for the Quality of Life (QoL). The event will be held in Mexico City on November 9 and 10. CREA, an active member of the group for years, was invited to share their research and discuss the issues that would be the focus for future projects Some of the main topics of the event will be the QoL of people with intellectual developmental disorders (IDD) and their families.
In the field of IDD, where it is impossible to think of healing as a restitution of functional abilities similar to those of most people, the problem of diagnostic and therapeutic intervention is closely related to the effort to improve QoL. The QoL of the family of people with IDD represents an area of relatively recent research, but is attracting increasing interest in many disciplines in the sector. In fact, the therapeutic rehabilitation and intervention for the individual requires the redefinition of the expectations of his or her family and achievable objectives in line with a good relationship between the interest and satisfaction of the universal values for the quality of life. The identification of these particular problem areas in this process of redefinition could coincide with identification of new needs for the families and indicate the way toward new forms of care. Other developments of the research should come from the recent finding, replicated in several countries, in which a number of correlations between the quality of life of the individual and the family plenty was lower than expected.
This article has been translated and adapted to English (American) by Julie Colangelo